<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	xmlns:media="http://search.yahoo.com/mrss/" >

<channel>
	<title>Newborn Blood Spot Privacy Concerns &#8211; LSD News</title>
	<atom:link href="https://lsd.hu/tag/newborn-blood-spot-privacy-concerns/feed/" rel="self" type="application/rss+xml" />
	<link>https://lsd.hu</link>
	<description>Updates You With The Latest News 24/7</description>
	<lastBuildDate>Thu, 10 Jul 2025 19:59:05 +0000</lastBuildDate>
	<language>en-US</language>
	<sy:updatePeriod>
	hourly	</sy:updatePeriod>
	<sy:updateFrequency>
	1	</sy:updateFrequency>
	

<image>
	<url>https://lsd.hu/wp-content/uploads/2026/02/cropped-lsd-32x32.png</url>
	<title>Newborn Blood Spot Privacy Concerns &#8211; LSD News</title>
	<link>https://lsd.hu</link>
	<width>32</width>
	<height>32</height>
</image> 
	<item>
		<title>How things really work inside the State Capitol.</title>
		<link>https://lsd.hu/how-things-really-work-inside-the-state-capitol/</link>
		
		<dc:creator><![CDATA[LSD News Szerkesztőség]]></dc:creator>
		<pubDate>Thu, 10 Jul 2025 19:59:05 +0000</pubDate>
				<category><![CDATA[Health]]></category>
		<category><![CDATA[California]]></category>
		<category><![CDATA[Capitol]]></category>
		<category><![CDATA[CBS California Investigates]]></category>
		<category><![CDATA[CBS13 Investigates]]></category>
		<category><![CDATA[Digital Democracy]]></category>
		<category><![CDATA[Handcuffed in Hallways]]></category>
		<category><![CDATA[Julie Watts Investigates]]></category>
		<category><![CDATA[KCAL News Investigates]]></category>
		<category><![CDATA[KPIX Investigates]]></category>
		<category><![CDATA[Newborn Blood Spot Privacy Concerns]]></category>
		<category><![CDATA[state]]></category>
		<category><![CDATA[work]]></category>
		<guid isPermaLink="false">https://www.lsd.hu/how-things-really-work-inside-the-state-capitol/</guid>

					<description><![CDATA[From cops called on elementary school kids for behavioral issues to the state storing and sharing your DNA without permission, we showed you how our CBS News California investigations have lawmakers pushing for change. Now, we&#8217;re giving you a glimpse into how things really work inside the California State Capitol.  The Capitol doesn&#8217;t generally work [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>
</p>
<div id="">
<p>From <span class="link"><a href="https://www.cbsnews.com/sacramento/news/handcuffs-in-hallways-cops-called-to-schools-california-law/" target="_blank" data-invalid-url-rewritten-http="" rel="noopener">cops called on elementary school kids</a></span> for behavioral issues to the state <span class="link"><a href="https://www.cbsnews.com/sacramento/news/baby-dna-parental-consent-genetic-records-california-law-newborns/" target="_blank" data-invalid-url-rewritten-http="" rel="noopener">storing and sharing your DNA without permission</a></span>, we showed you how our CBS News California investigations have lawmakers pushing for change.</p>
<p>Now, we&#8217;re giving you a glimpse into how things really work inside the California State Capitol. </p>
<p>The Capitol doesn&#8217;t generally work the way people think it does, and bills prompted by our reporting provide the perfect examples.</p>
<p>Our <span class="link"><a href="https://www.cbsnews.com/sacramento/news/handcuffs-in-hallways-cops-called-to-schools-california-law/" target="_blank" data-invalid-url-rewritten-http="" rel="noopener">Handcuffs in Hallways</a></span> investigations revealed that cops were called to K-8 campuses more than 10,000 times in a single year, including for things like tardy mediation, inappropriate behavior, and disrupting school activities which is technically a misdemeanor.</p>
<p>&#8220;We&#8217;re using valuable resources, having cops come to campuses thousands of times a year for very minor incidents,&#8221; said California Assemblymember Ash Kalra. </p>
<p>Assemblyman Kalra introduced a bill intended to reduce unnecessary calls for cops on campus for the second year in a row. </p>
<p>Last year, Assembly Education Chair Al Muratsuchi simply chose not to schedule Kalra&#8217;s bill for a hearing, single-handedly killing it.  </p>
<p>Many people don&#8217;t realize that one person, a committee chair, has the power to quietly kill any bill before anyone ever gets a chance to vote.</p>
<p>This year, however, he&#8217;s supporting the bill with changes. &#8220;I just want to clarify for the record there were many amendments taken to the bill,&#8221; Muratsuchi said at the hearing. </p>
<p>Those amendments include clarifications that administrators can&#8217;t prevent staff from calling the cops and that they must notify law enforcement of drug sales and weapons on campus. </p>
<p>If a chair supports a bill, it usually passes, and this one did despite concerns by some committee members that it could lead to underreporting of on-campus crimes.</p>
<p>Now the bill heads to the Appropriations Committee where many bills quietly die in the dreaded suspense file without a vote&#8230;  like last year&#8217;s <span class="link"><a href="https://www.cbsnews.com/sacramento/news/right-to-know-california-storing-your-childs-dna/" target="_blank" data-invalid-url-rewritten-http="" rel="noopener">newborn genetic privacy bill that was prompted by our 10-year investigation.</a></span>  </p>
<p>Nearly every baby born in the U.S. gets a heel prick shortly after birth. Their newborn blood fills six spots on a special  card used to test the baby for dozens of disorders that &#8212; if treated early enough &#8212;  could save their life.</p>
<p>The test itself  is crucial, but it&#8217;s what happens after the test that has many people concerned.</p>
<p>The leftover bloodspots become &#8220;property of the state&#8221; and may be purchased by researchers or shared with law enforcement without your knowledge or consent.</p>
<p>For years, everyone from parents to privacy advocates has been calling for more transparency.</p>
<p>In fact, three different senate committees <a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240sb625" target="_blank" rel="nofollow noopener">voted last year to let parents opt out before the state stores  their child&#8217;s DNA</a>. However, the full Senate never got to vote.</p>
<p>Why? </p>
<p>The state Health Department claimed it would cost millions to give parents that right. So the bill was sent to something called the suspense file where, in a budget deficit, expensive bills go to die.</p>
<p>That&#8217;s when the appropriations chair singlehandedly chose to kill the bill even though it wouldn&#8217;t have cost taxpayers a dime because required fees pay for the program.</p>
<p>So now there are two new bills. <a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240sb1099?slug=CA_202320240SB1099" target="_blank" rel="nofollow noopener">One following our recent report would force the state to publically post the list of the research studies using California&#8217;s  blood spots.</a> The other would <a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240sb1250?slug=CA_202320240SB1250" target="_blank" rel="nofollow noopener">require the state to get your permission before storing or sharing </a>your DNA.</p>
<p>The first bill was so popular that it passed on consent without a hearing. The<a href="https://sjud.senate.ca.gov/content/april-23-2024-hearing" target="_blank" rel="nofollow noopener"> second was pulled by the author</a> in a closed-door deal to resurrect last year&#8217;s bill that died in the suspense file.</p>
<p>That is because, this year, there&#8217;s a new appropriations chair, which means a new chance of survival for the <a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240sb1099?slug=CA_202320240SB1099" target="_blank" rel="nofollow noopener">newborn genetic privacy bills</a> and <a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240ab2441?slug=CA_202320240AB2441" target="_blank" rel="nofollow noopener">Kalra&#8217;s school safety bill.</a></p>
<p>    <!-- data-recirc-source="chartbeat" --></p>
<aside class="component list recirculation component--type-recirculation component--type-recirculation-collection">
<div class="component__heading-wrapper">
<h3 class="component__title">CBS News California Investigates<br />
                          <a href="https://www.cbsnews.com/sacramento/feature/cbs-news-california-investigates/?intcid=CNI-00-10aaa3a" class="component__view-more component__view-more--lg" data-invalid-url-rewritten-http="" target="_blank" rel="noopener"><br />
                More<br />
                <svg viewbox="0 0 32 32" class="icon__caret-right" aria-hidden="true">
                  <use xlink:href="#icon-caret-down"/>
                </svg><br />
              </a><br />
                      </h3>
</p></div>
</aside>
<p>    <!-- tags --></p>
<div class="content-author">
      <a href="https://www.cbsnews.com/team/julie-watts/" class="content-author__name" data-invalid-url-rewritten-http="" target="_blank" rel="noopener">Julie  Watts</a></p>
<div class="content-author__bio">
<div class="content-author__full-information">
<p class="content-author__text">Julie Watts is a national-award-winning investigative correspondent for CBS News, covering California. Her investigations, Capitol accountability reports, and solutions-oriented journalism air weekly on CBS stations across California.</p>
</p></div></div></div></div>
<p></p>
]]></content:encoded>
					
		
		
		<media:content url="https://assets1.cbsnewsstatic.com/hub/i/2024/04/29/ecf70b6f-b42f-47ac-8a94-4fc0bd1894d7/quiet-please.jpg" medium="image"></media:content>
	</item>
		<item>
		<title>Gov. Newsom signs law to shed light on state storage of newborn DNA, prompted by 10-year CBS News California investigation</title>
		<link>https://lsd.hu/gov-newsom-signs-law-to-shed-light-on-state-storage-of-newborn-dna-prompted-by-10-year-cbs-news-california-investigation/</link>
					<comments>https://lsd.hu/gov-newsom-signs-law-to-shed-light-on-state-storage-of-newborn-dna-prompted-by-10-year-cbs-news-california-investigation/#respond</comments>
		
		<dc:creator><![CDATA[LSD News Szerkesztőség]]></dc:creator>
		<pubDate>Thu, 26 Sep 2024 23:09:45 +0000</pubDate>
				<category><![CDATA[Health]]></category>
		<category><![CDATA[10year]]></category>
		<category><![CDATA[California]]></category>
		<category><![CDATA[CBS]]></category>
		<category><![CDATA[CBS13 Investigates]]></category>
		<category><![CDATA[DNA]]></category>
		<category><![CDATA[Gov]]></category>
		<category><![CDATA[investigation]]></category>
		<category><![CDATA[Julie Watts]]></category>
		<category><![CDATA[Julie Watts Investigates]]></category>
		<category><![CDATA[KCAL News Investigates]]></category>
		<category><![CDATA[KPIX Investigates]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[Light]]></category>
		<category><![CDATA[newborn]]></category>
		<category><![CDATA[Newborn Blood Spot Privacy Concerns]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsom]]></category>
		<category><![CDATA[prompted]]></category>
		<category><![CDATA[shed]]></category>
		<category><![CDATA[signs]]></category>
		<category><![CDATA[state]]></category>
		<category><![CDATA[Storage]]></category>
		<guid isPermaLink="false">https://www.lsd.hu/gov-newsom-signs-law-to-shed-light-on-state-storage-of-newborn-dna-prompted-by-10-year-cbs-news-california-investigation/</guid>

					<description><![CDATA[Amended bill allows California to continue to conceal who is using newborn DNA for research &#8212; and why. Bills to shed light on newborn DNA storage in California quietly killed or gutted 03:22 Gov. Gavin Newsom signed a bill (SB 1099) Wednesday prompted by a decade-long CBS News California investigation into California&#8217;s newborn genetic biobank.  [&#8230;]]]></description>
										<content:encoded><![CDATA[<p>
</p>
<div id="article-0">
<figure class="embed embed--type-video embed--type-content_video is-video embed--float-none embed--size-medium is-hero" data-ads="{" extrawordcount="">
<div class="embed__content-wrapper">
<link rel="preload" as="image" href="https://assets2.cbsnewsstatic.com/hub/i/r/2024/08/01/76534ff0-63f8-4971-84f8-5d3707136894/thumbnail/1280x720/61ec8de5fc09eb628f16089a5eb1313e/nbs.jpg?v=75eebeb27c74c775b9f2d93539861fb6"/><svg xmlns="http://www.w3.org/2000/svg" style="position:absolute;width:0;height:0"><defs><symbol id="player-icon-pause" viewbox="0 0 32 32"><path d="M4 4h10v24h-10zM18 4h10v24h-10z"/></symbol><symbol id="player-icon-play" viewbox="0 0 32 32"><path d="M6 4l20 12-20 12z"/></symbol><symbol id="player-icon-close" viewbox="0 0 32 32"><line stroke-width="6" x1="3" y1="3" x2="29" y2="29"/><line stroke-width="6" x1="29" y1="3" x2="3" y2="29"/></symbol><symbol id="player-icon-fullscreen" viewbox="0 0 32 32"><path d="M32 0h-13l5 5-6 6 3 3 6-6 5 5z"/><path d="M32 32v-13l-5 5-6-6-3 3 6 6-5 5z"/><path d="M0 32h13l-5-5 6-6-3-3-6 6-5-5z"/><path d="M0 0v13l5-5 6 6 3-3-6-6 5-5z"/></symbol><symbol id="player-icon-drag" viewbox="0 0 40 55"><g fill="#f5f5f5"><circle cx="5" cy="5" r="5"/><circle cx="20" cy="5" r="5"/><circle cx="35" cy="5" r="5"/><circle cx="5" cy="20" r="5"/><circle cx="20" cy="20" r="5"/><circle cx="35" cy="20" r="5"/><circle cx="5" cy="35" r="5"/><circle cx="20" cy="35" r="5"/><circle cx="35" cy="35" r="5"/><circle cx="5" cy="50" r="5"/><circle cx="20" cy="50" r="5"/><circle cx="35" cy="50" r="5"/></g></symbol></defs></svg></p>
<div class="embed__sticky-content lazyload" data-component="viewability" data-viewability-options="true">
<div class="player-overlay__container  player-overlay--draggable " data-theme="default">
<p>
                  <svg class="player-overlay--icon-grid"><use xlink:href="#player-icon-drag"/></svg><span class="player-overlay__title">Amended bill allows California to continue to conceal who is using newborn DNA for research &#8212; and why. </span></p>
<p>        <button class="player-overlay__button player-overlay__button--close" data-target="" aria-label="Disable small player"><br />
          <svg class="player-overlay__button--icon player-overlay__button--icon-close"><use xlink:href="#player-icon-close"/></svg></button></p>
<p>  <iframe data-src="https://www.cbsnews.com/embed/video/?v=75eebeb27c74c775b9f2d93539861fb61727392184&amp;usprivacy=null#tVj7b9s4Ev5XDAH1D5cw1oN6eWHsOXHSC65NgqRd4BAXBiVRMjd6rSjZcVP%2F7zdDyc92%2BwA2aRNRwyE5Q34z%2FEYvGmvqokzZShvWVcNPNSEvijRlpRRByrVhzFIJ0ogvRAiv0JBPMEA71RYi4oU2fNFEzTOpDR9ftHpVos6iiKBfRNA0g9CkkRMT048NQmPLJUEUMkIjrke26XiG74NuVj7f8%2FgaRyw%2BSPoxSC6Lh9vbm4a%2BN%2F93cVst0s8fHLZaBfcJaBeVSER%2BGYlaFDkMkSwEqUybBF4CkaaS1AWRcx6RVCTzmhQ5yfkyKKqcRDkjsi4qlnAichKyVMQgF4z81QhepyvyBBPAyKIiSVPXHF2pRY17oY0znkc86uEaPZamxVL2LrYz9OqiFxZ5LfKGQ%2Fvs7EzDjXuCgdCImzTdzHOONqI62thTNvaKvNfZ2JvcjHudjT2R76%2FQ2dhrbewVVW9rY8jyIhfgz4dXXKQWGZc1y0ptaLimSV2d6vgDfjYVa4%2FD1M3d6zsW8BSM0a2hacIEafuew2YAQjJYXCKEJJ78vK5LOZwOpgMmJa%2BlcRYGEsyVsGItwrOwyKaDeRNMB2I6qKYDWIhOB7oHv8Z04Dq2ReNYJ44Ve4T6rkE8Ci07slzdNSzH80G7njdZkDORTgcO1Z8tR4dGBD%2BuY%2FiU6UbsO75NTc50PdRNX%2FdDfzrIA3n2Z5n8vhi5NucBD0w3dGnounbgx2bkW7ble44RBw64OP%2BWL%2Bbr%2BmKYnv7smuiMwUMv4nYc6j4PHNOLDUf3fGbzwLAMi%2F%2BSM%2BtTrawg8vnyY5UeeFVWRXQGca6SwMa31qvuZTpYgF%2FzFBqW7pvU02fqJWOy5tVZZjXeLom81szmq0wNcZKxGqZmZZlCyCHQp4NnkpU8%2BXj%2FDjSao%2B1aLpeH6ykTpoN%2FPFlNB5h55XVWFmjxNn9DyhahStaIzjjmFCBjEdMzYkItyyK%2BbjPCAtOyXUqpa5m7jJoWsDDaJMGIBcS%2FSJTLEsEueMWqcA7Xx2OriAkGe3YvvaNRnwBVrOJ5%2FQGNumEZZqt3Sv2mHbud9XzVdj8e9l9%2FNSEk460FZN%2BCb9r9CYDNSyGLCOY2wFHOpLpJDPSaJ5Dm67ajKSEApNxcjrDMOAxBcA6TP23zmPwoefXQBDKsRACJcrPrsoTVimqjN%2BfP4wmPWZMiePRT%2BKcp6flOavmn1D618VJkER5YvGz%2FzlKRPx2Ayo111z1bnMXLrMrOcl5DsgEAJJAOfg%2BliEYvkGBhILbXfSbz5cg2dcsw%2BiHDXvy77scpS0ZvzHOWhQE8eBZW8IjqKoKHTOtSPVQfUAB8xAFTfas8hEfeqAGM16Kf8boaGbpp9XdrQdDFXfuNNX5bFEnKJ%2BPri4fx9eym%2BONufD3pl4sqHz3ej28mt%2B8%2F9WHDy9EiY6WBa0Lk0b7cM35R7isv4KYZ6b%2FNwE8JRGRWQqyMXiAwZ%2BgcinPB4TDyWSsb3ekX%2BoXljifE1C8ooZdXLhlfmTY5vzy%2FODecyZVnX%2FYXSYNbpB7rvvw8ekGOxCtY5DNf9%2BcQXSN1EuDTG%2FMK%2Fh%2BFeL9EMgTD8NEa8sRXs2VRRXL0osJx3W9Z1eilfa77sEaNyWW05IEakkQlbOi2OQN6Aa7Uo5f9t3U%2FKUsQgX%2ByrkSeKMFMIaBrgEQsYNfe3t6%2BfXc5u755%2BHB%2FOX4%2F%2B%2BN6cnk7u7m9ubj81H%2BJMwn7V7FMrn%2FTVJCyTF3PiCCA3j6eEJ9wKNqwPRXkH62OQhUmScAVvJ8grk4QVSeIqRNE1Ani6QTRdIJYOkEknSCOThBFSAcBRxB%2FAKRTbX8NxBLM2b4Ov4kltBvQBFobiIAEEYXUEjF1ohCFcX5gPqLqcBAiSxsCtTnAFrrYoUtruw7xBf0%2FhTBcAMGF87UoQ5M%2B4%2Bs%2B0jA%2FANa%2Bd5mgxx3x7tDWGbbFG%2Fa0iNP2mPwGdTi%2Bwx1IAXndcIRYlxKP8YejDxAIOoA0Jd6hsBXOOuxskIhSwCLu9ffQqLjHzqxN2bEGcV2x8AkWUMgsMhkWFVdtuO0tXbd1zwE4Uhh1cf5ws9ul0AHRvzAVw0suwcyZOs%2FuugAJK2cMLbuZDsZbnRDdXYSGsZWo89ifG61K2mIoLJoc3Eda%2Bwj3UpCCranAEbjwGi%2BLK2hcbm6f7qbImue7qih5Va%2F%2By1dYOFGXR8x2LMONDJv61DdMy2IWkLJPKkCY4s2wFzVPVtgG2byIWlYCZYoyqrvBY87qpgKeECItb5l8ixiwHu4oPNJdlYOhXQpobGnK8xxYUQhlIQ9brrMdNh0czw0M5OiMhLzMGRSTUYcmVgEDTvm4AXsrrPkeNd31bSgLTeIwzyGGwU3iR4ZJdN3wYu4BGQ90dc3vD91Qgz%2BbVPDektW13NNRxWRALR%2F2TAd6EwVQfgaUeMwxiWnqlIfU8G2u7yy6a4IJuIC7D3Sc6D4xnZ5pDA1nSP1jwzGq9lfedj9wiIqIVaut3uPOKixaj2Wbgi0pFmeKMBVZT4okl72ULb8u4LCC4NvSrYi3FR2wxdMepMisrLFGXfUMnaw4q3qQLFoitiOQh5xsZ%2FyHDSzyGk531kkxeLan355YTC0vdk2XuHEcEkqZB%2BzRpyQ0bcvwQxpSRvE0duM2x%2FV9a7g6wzY1dcbsPjkIOeELPB51OyUbBZxthl8hMIXCc%2FdloJGd6D8CyfCvUFQc9dBa%2FgMOjJqdJXjRgFAsABUqkaq0e%2F0LnLve48R%2Fbx%2FYLjKBaYh2BtyqbyLbjyEbLBZNpZL9NzYdtIKK5dFdl2WVld290t53u43ffly4Y%2FVcZQZYBtgBYATSQ1s5bYqWIC2KiMA%2B1KSsxIKFKwJwCnmVS9KiGx%2F7xQzAXNUt21WOq82vyqfXWB24vSpI5C8UEgDDIgWwhapq4SyF3TnQP9hucOFYSg6Qf9pmFKIyynHX0zeMOB6DaqV4Ptb4ic1pzTMschyKcpPOdpvz8z5%2FNf46UjNQ5vCAUYe4thf9Xb4%2F1TyPOp6jsx%2Boccu0PTuCqOLUJtSNOGFMd0jsciuwY8pZELdVZ8K70HodCM3udit0eB2%2BzkqbnDPZsLnDzPPly5dd8KLuXQXcvVrdt2QMbBOb71HQiYybVU%2FAvfPkIi2a6LZKVDYw9IllmKZtm%2FbVle36%2Bpj6%2BoRO%2Fj2OigBSTqIuhkMGpnUUTOs42CFT%2FXkOBiyDHTKu%2FZnWrVuHe935eqGI1Z6wBpCKJkMLeY73B34I0tpyQqR7umoz1kivIsHuCqmukS61p5xF3bXzw%2FT0T52yol8%2FXO0VvyWt1%2F8H" class="lazyload embed__frame" data-width="1920" data-height="1080" frameborder="0" scrolling="no" allowfullscreen="allowfullscreen" id="bills-to-shed-light-on-newborn-dna-storage-in-california-quietly-killed-or-gutted--hero" title="Video: Bills to shed light on newborn DNA storage in California quietly killed or gutted" data-sort-time="1722536151000" data-update-time="1722536151000"></iframe></p></div></div></div><figcaption class="embed__caption-container"><a href="https://www.cbsnews.com/video/bills-to-shed-light-on-newborn-dna-storage-in-california-quietly-killed-or-gutted/" class="embed__headline-link" data-invalid-url-rewritten-http="" target="_blank" rel="noopener"></p>
<p>          <span class="embed__icon"><br />
            <svg viewbox="0 0 32 32" aria-hidden="true"><use xlink:href="#icon-video"/></svg></span></p>
<p>          <span class="embed__headline">Bills to shed light on newborn DNA storage in California quietly killed or gutted</span></p>
<p>          <span class="embed__video-duration">03:22</span></p>
<p>                      </a></p>
</figcaption></figure>
<section class="content__body">
<p>Gov. Gavin Newsom signed a bill (<a href="https://digitaldemocracy.calmatters.org/bills/ca_202320240sb1099?slug=CA_202320240SB1099" target="_blank" rel="nofollow noopener">SB 1099</a>) Wednesday prompted by a decade-long CBS News California investigation into California&#8217;s newborn genetic biobank. </p>
<p>We still won&#8217;t know who is using your DNA for research, or what the research is for, but the California Department of Public Health must now reveal the number of newborn DNA samples that California is storing and the number of DNA samples that the state sells to researchers each year.  </p>
<p>California has stored blood spots from every baby born in the state since the 1980s. Researchers and law enforcement can use those DNA samples without your knowledge or consent. </p>
<aside class="newsletter_signup ">
<figure class="embed embed--type-newsletter-widget embed--float-none embed--size-large embed--type-iframe" data-ads="{" wordcount="">
</figure>
</aside>
<p>If you&#8217;re related to someone who was born in California since 1983, a portion of your DNA is likely in the state&#8217;s massive Newborn Genetic Biobank. In response to <a href="https://www.cbsnews.com/sacramento/tag/newborn-blood-spot-privacy-concerns/" rel="nofollow noopener" data-invalid-url-rewritten-http="" target="_blank">our decade-long investigation,</a> lawmakers <a href="https://www.cbsnews.com/sacramento/tag/newborn-blood-spot-privacy-concerns/" rel="nofollow noopener" data-invalid-url-rewritten-http="" target="_blank">introduced several bills</a> this year that were intended to shed light on how the state is amassing and using California&#8217;s newborn DNA stockpile.</p>
<p>SB 1099 was the only bill to survive the legislative session. </p>
<p>While privacy advocates say it is a step in the right direction, recent amendments raise new questions about the appearance of state secrecy.</p>
<p>The initial bill was heavily amended to remove the requirements for the state to reveal which researchers are purchasing the DNA and what they are using it for.</p>
<p>Privacy advocates plan to try again next year.</p>
<p><em>See our continuing coverage on newborn blood spot privacy concerns </em><a href="https://www.cbsnews.com/sacramento/tag/newborn-blood-spot-privacy-concerns/" target="_blank" rel="nofollow noopener" data-invalid-url-rewritten-http=""><em>here</em></a><em>.</em></p>
<p><em>Learn more about newborn bloodspot storage and how to opt out of storage or research</em><a href="https://www.cdph.ca.gov/Programs/CFH/DGDS/Pages/nbs/default.aspx#:~:text=How%20it%20works,and%20congenital%20heart%20disease%20screening." target="_blank" rel="nofollow noopener"><em> here</em></a><em>.<br /></em></p>
<p>    <!-- data-recirc-source="chartbeat" --></p>
<aside class="component list recirculation component--type-recirculation component--type-recirculation-collection">
<div class="component__heading-wrapper">
<h3 class="component__title">CBS News California Investigates</h3>
<p>                      <a href="https://www.cbsnews.com/sacramento/feature/cbs-news-california-investigates/?intcid=CNI-00-10aaa3a" class="component__view-more component__view-more--lg" data-invalid-url-rewritten-http="" target="_blank" rel="noopener"><br />
              More<br />
              <svg viewbox="0 0 32 32" class="icon__caret-right" aria-hidden="true"><use xlink:href="#icon-caret-down"/></svg></a>
                  </div>
<p>                  <a href="https://www.cbsnews.com/sacramento/feature/cbs-news-california-investigates/?intcid=CNI-00-10aaa3a" class="component__view-more component__view-more--sm" data-invalid-url-rewritten-http="" target="_blank" rel="noopener"><br />
            More<br />
            <svg viewbox="0 0 32 32" class="icon__caret-right" aria-hidden="true"><use xlink:href="#icon-caret-down"/></svg></a><br />
                    </aside>
<p><!-- tags --></section>
</div>
<p></p>
]]></content:encoded>
					
					<wfw:commentRss>https://lsd.hu/gov-newsom-signs-law-to-shed-light-on-state-storage-of-newborn-dna-prompted-by-10-year-cbs-news-california-investigation/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<media:content url="https://assets1.cbsnewsstatic.com/hub/i/r/2022/02/16/fd28c4fe-9a33-4724-9714-cd5dec4e102d/thumbnail/1200x630/ae314695cae8be348c312b84ceecb70b/newborn-blood-sample.jpeg?v=75eebeb27c74c775b9f2d93539861fb6" medium="image"></media:content>
	</item>
	</channel>
</rss>
